February, 2008


29
Feb 08

iConference wrapup

I’ve had a great time here at the iConference; it’s been a busy few days, but very rewarding. I’ve also really enjoyed walking around UCLA’s campus, it’s one of the most beautiful I’ve visited (and the perfect weather compounds the experience).

Thanks to everyone who made this such a great experience: Jonathan Furner for his great work on the doctoral colloquium; danah boyd, Nicole Ellison and Alice Marwick for an excellent SNS panel; Alla Zollers for wrangling together a great social tagging panel with Lilly Nguyen, Tony Moore and Terrell Russell.


Here’s a picture of Terrell from this morning. I think he was changing the world at the moment. You’ll find out about it later.


28
Feb 08

Google Health: Launch early and iterate?

Google VP Marissa Mayer has posted some more information about Google Health on the Google Blog. The first bullet point of her post deals with privacy, with the official position still ambiguous:

Due to the sensitive and personal nature of the data that will be stored in Google Health, we need to conduct our health service with the same privacy, security, and integrity users have come to expect in all our services. Google Health will protect the privacy of your health information by giving you complete control over your data. We won’t sell or share your data without your explicit permission.

So Google Health is going to give me the option of selling my health records? And realistically, shouldn’t we expect greater privacy for personal health data as opposed to say, our Google reader? Of course, none of this addresses the question regarding Google’s reading of the records, nor does it address the format of storage. Based on the comments to my last post (they’re great, do read), it seems that I’m the naive one for ever assuming that Google wouldn’t be reading and profiling me based on my records. I’m following privacy expert Michael Zimmer as he tracks the issue.

The main reason I’m posting today is because, in the Google blog post, Mayer posts screenshots that contain links to the Google Health privacy policy. I can’t find this policy anywhere, but if a reader or anonymous Googler might leave a comment directing me to the policy, I’d love to read it. Frankly, I’ve never been so excited to read a privacy policy.

Another note of worry comes from Mayer’s characterization of Google Health’s development strategy. She says “We’re proud of the product that we’ve designed and are continuing to build, but recognize that we are just at the initial stages of our “launch early and iterate” strategy.” This strategy may work fine at your average Web 2.0 startup, but these are health records we’re talking about, and serious partnerships with major health care and insurance vendors. Frankly, this doesn’t lend itself well to the “launch early and iterate” philosophy.

I wish Google would show a little more respect for this very special data.

Update: Michael Zimmer has posted on this new development:

We need to learn more about what Google is contemplating here: What plans exist to sell or share my medical data if I do give explicit permission? How will my data be used, and by whom? How will my permission be granted? Will I know who is using the data and how? Can I decide I want to share it with certain parties and not others?


27
Feb 08

Unit Structures in Los Angeles

This week, I’ll be in Los Angeles visiting my wonderful sister and attending the 2008 iConference. I’ll be attending the Doctoral Colloquium and appearing on two panels – it’s going to be a busy few days. Regular writing will return in the next few days.

P.S. – Early registration for the ASIST Social Computing Summit ends on Friday, February 29, and the poster submission date was extended to Feb 29 to simplify things. Thanks to everyone whose submitted posters so far.


21
Feb 08

Google (reading) your health records

With the announcement of a Google Personal Health Records (PHR) pilot program, the company adds medical records to the gowing dossier of information it collects about its consumers. CNN reports:

The pilot project to be announced Thursday will involve 1,500 to 10,000 patients at the Cleveland Clinic who volunteered to an electronic transfer of their personal health records so they can be retrieved through Google’s new service, which won’t be open to the general public.

Using a secure API, patients can transfer their health records to their Google accounts, creating a transportable repository of health information. Just as one might import IMAP folders into Gmail, soon we’ll all be moving our health records to Google.

This program raises numerous privacy concerns. Primary is the question of access; when one imports one’s health records to Google, does this mean Google gets to view the records? If one reports a cigarette pack history during a physical exam, will Google now flash ads for smoking cessation products to the user?

Google engineer Above all, health data will remain yours — private and confidential. Only you have control over when to share it with family members and health providers.” What does private mean? In context, Newberger is talking about transfer control, he’s not addressing whether Google gets to peek in on your records as well. Perhaps Alan will clarify?

It would be fairly trivial for Google to design a system that is truly private. Germany, for example, uses a PHR system that stores encrypted records. Only when a patient presents her “health card”, which decrypts the records, do they become viewable. Google certainly could design a system like this, but it would be of no benefit to their core marketing business.

While this is only a pilot program, it will grow quickly. According to Newberger, “We’ve been hard at work collaborating with a number of insurance plans, medical groups, pharmacies and hospitals.” If Kaiser and Blue Cross and CVS decide to play along, almost all of us lucky enough to have health care (sigh) will have the option to import our medical histories to Google’s servers.

Assuming that Google will be able to read our records, and I’ll update this if I’m wrong, let’s consider the ethical leap this is for the company. Can I ever really give informed consent when I’m trading my health records, deeply personal and private information, for the measly tradeoff of what essentially boils down to online hosting of text files? Sure, I’ve already given Google my search and communication information, but they had to work for it. But my entire medical history just so I can access it when I want? And they can market to me with that information? This is simply too much to give away for convenience.

I hope that someone can clarify the question of privacy. Will Google read my health records, or will the be stored encrypted, supposedly blind to the Google all seeing eye?


16
Feb 08

Responding: Are social networks good for society?

Yesterday, I wrote about the Freakonomics blog post that asked if social network sites are good for society. I’ve had a little time to parse the responses; I don’t really have an answer to the question, but I thought I might add some observations.

The first respondent, Nicole Ellison, addresses a main issue concerning these sites and their actual affect on society. While social network sites eat up plenty of news cycles, they’re used by a relatively homogeneous 20% of our population. These numbers are nothing to scoff at, but for every one American that uses these sites, there are four that don’t. Of Facebook’s users, 25.6 million of them live in the United States; of those, approximately 14 million are college adopters, leaving about 12 million “other” American users of Facebook. It only seems like everyone is on Facebook. These networks have hardly gone society-wide yet, and Ellison rightly states that “as they continue to be adopted by more diverse populations, we will see an increase in their utility.”

Of course, the question posed by the Times is forward-looking, so perhaps we should assume that one day we’ll all be social networkers. Taking Wellman’s personal networks, or Castells’ network society literally, it’s possible that we’ll eventually outsource social and economic transactions to the network. However, I think this gives online social networks a little too much credit; what if online social networks were nothing more than the new email? I think we should temper expectations of just how much of our lives we expect to send to the network.

Further written into the Wellman/Castells assumption is a notion of permanence/persistence; that society might decide on the one great network and outsource interaction to it, creating great masses of active social capital. Even though social networks are still nascent, we certainly haven’t seen any evidence that leads us to believe we institutionally value our accumulated SNS social capital. Need proof? Look at all your friends jumping from Myspace to Facebook. If we can’t all agree on a society-wide space, and we are drawn to new social networks like moths to a flame, doesn’t this nullify the persistence hypothesis?

Perhaps the fact a network can’t go society-wide is the critical turn. Online social networks thrive in real-world networks, and real-world social networks thrive on tight, local clusters. Media, celebrities and national ideologies write a society into being; our networks enact our lived realities. If your network agrees on a social network for mediation, you’ll find yourself satisfied by the network, and it doesn’t matter if 290 million other Americans take part. The disparate clusters that make up our society can have their needs met by multiple, diverse networks. In the end, its all about how the network answers your situationally relevant needs.

If our lived experience in online social networks is going to be nomadic and temporal, than what societal value is derived? Just as college students get social utility from Facebook, perhaps other networks will rise to answer other needs – relocation, new parenthood, and so on. Social networks might just provide the relatively short-term support one seeks when information and social capital deprived. That’s not a bad thing in my book.

Any notion of a global, persistent, overarching online social network that exists in the mainstream for more than a few years, however, is fantasy. Young people already know that Facebook is passe. They use it, but they’re ready for the next thing. We naturally want to migrate; on top of that, the authoritarian nature of these spaces prevents us from embracing them as “real” and vibrant. We use the sites, the sites use us, and we move on.

Of course, our online movement mirrors society. We’re constantly negotiating and renegotiating social networks, rearranging importance based on personal or economic need. This complex dance is exactly what we see in online social networks. Therefore, it might be useful to theorize new types of social capital that reflect the spatial intersection of physical and virtual networks. Just as we’re not going to take part in one physical network for life, the ability to exploit the temporal reality of online social network may reflect new skill sets and forms of ties. This sociotechnical capital, sets of ties that bridge the physical and virtual in temporal sync, may be the new relation afforded by online social networks. Rather than forcing offline models to fit the virtual, perhaps its time to think of new models.

Further reading:
Barry Wellman’s Personal Networks
Manuel Castells’ Network Society
Benedict Anderson’s Imagined Communities
Jane Jacobs’ Death and Life of Great American Cities
Paul Resnick’s SocioTechnical Capital


15
Feb 08

Are social network sites good for society?

Tune in to the Freakonomics blog to see what my friends Nicole Ellison and danah boyd have to say. They join Martin Baily, Steve Chazin, Judith Donath and William Reader in answering the following question:

Has social networking technology (blog-friendly phones, Facebook, Twitter, etc.) made us better or worse off as a society, either from an economic, psychological, or sociological perspective?

When I get a few moments this weekend I might chime in on the discussion. Check it out on over on the Freakonomics blog.


15
Feb 08

Facebook users – help with our research!

In the next few weeks, Jacob and I will be running some research on influence and impression management in Facebook. If you’re a Facebook user and under 26, please consider taking this ten minute pilot survey. A pilot survey is a pre-test, and while these results won’t be used for publication, they will help us better tune our survey instrument to get better results.

Here’s a link to the survey:

http://tinyurl.com/2cc5sw

If that link doesn’t work, this should:

http://www.ibiblio.org/fred/survey/index.php?sid=83786

A couple quick notes: the final survey will be sent to undergraduate students, hence there are a lot of college references in the instrument. Feel free to leave any thoughts here as comments, or just email them to me directly. Thank you for your help!